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Sonja

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2 Posts | 2 Comments | Active Since 2010
 

 

 

 

Always looking for ways to help Ciarra.

I'm Ciarra Nanna and her guardian, Diagnosis

1. Premature birth 3lb 6oz   2. Failure to thrive  3. Spinal meningitis age 6month  4. Hearing loss  5. Mental Delays  6. Cerebral palsy 

 7. Microcephaly  8. Partial Monosomy of Chromosome seven.  9. Sacral Agenesis

10. Tethered Cord Syndrome

11. Feeding tube  12. Immunologic defect poor immunoglobulin responses.

as of today 4/13/10 she is 12 years old and is 45 lbs keeping her world clean is one of my bigest problems. I have 8 other grandkids and 5 of them are her brothers & sisters all younger. They don't understand why Ciarra can't play like them or why she will not eat. why they can't always play in her room or with her toys. why can't she come home and live with them. Ciarra has no life expectancy they have found only 4 other case close to hers. Ciarra has changed my life I want to give her the world. She is love and loved.

 

                     

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