I have fibromyalgia, as well as other forms of arthritis, so between pain and fatigue, I often don't know what I will be able to accomplish on any day, so I make the most of good days. On not so good days, I break essential tasks into miniscule parts.
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Life is a challenge. I'm glad to hear that you are able to cope with the fibromyalgia.
Congratulations! You have an illness but you also seem to have a very positive attitude. God bless you.
Hi, I also have fibromyalgia and I know exactly how you feel. I have had it since 1995. I do alot like you,I also have a husband who is disabled (arthritis)and he can barely walk. We take care of each other, I'm 56 and he is 58. I never thought that my life would be like this. I was always so active and now I do good to get out of bed.
Hi Linda
It sounds like you really have adjusted to life with fibromyalgia. I am wondering if you have ever considered an all natural way to help relieve your pain. I think I can help, please e-mail me at debempey @ mts.net (remove spaces) and I can send you info that you may be interested in.
Debbie
I have MS and fibro....I bless the day I found out about flylady.net. This has been a huge help to me in keeping my home clean and keeping a positive attitude! Good luck!
yes i am right there with you. tho i am disorganized. but when i have a good day from the pain i do my best to be organized. have you been to rest ministries. and fibrohugs. both are .com sites. God bless you
You sound like you pretty much have 'it' together. I also have fibro/cfs. I tend to waste alot of time figuring out what to do first. Then I get all down on myself. I make list after list, if I get one or two things on my list done I consider it a good day. It's an awful thing to live with. If you are lucky enough to have a 'good' day, WATCHOUT. Be happy about it, do a little and then enjoy the rest. Over doing will set you back for at least a week if not more. Take it from me. Val
It's odd. I did better coping with breast cancer. Mastectomy, chemo, reconstruction, the whole thing. Better than I do with fibro/cfs. I think perhaps it's knowing it will never go away and the fatigue is very hard to deal with. My head wants to do so much around the house, that's where all my lists come from. But the body won't comply.
Hi, I believe I have had fibro since childhood. I can think back to different illnesses and now say they were caused from fibro. I have had some help from using Dr. Paul St. Amand's protacol. You might want to get a copy of his book "What Your Doctor May Not Tell You About Fibromyalgia" I am no longer bed ridden or house bound. This protacol has a large support group and for many has been the answer to prayers. I no longer have to take the high level pain killers and do have days I can be almost normal.
Here is a timely e-mail concerning CFS/Fibromyalgia pain.... The artilce suggests a sugar called "ribose." To buy, you can Google the name or buy on eBay.... eBay has the best prices on this item... The powder is lower priced than the pills...
Regards,
Jim
www.ivanhoe.com/
October 26, 2005
Treat Pain With Sugar
By Vivian Richardson, Ivanhoe Health Correspondent
(Ivanhoe Newswire) -- A little sugar can help reduce chronic pain. No, this isn't the sugar you'll find in ice cream or soda pop, but it does have a sweet effect on pain conditions like fibromyalgia.
Researchers at the Annapolis Research Center for Effective CFS/Fibromyalgia Therapies tested how effective a certain kind of sugar would be at reducing chronic pain. The treatment goes along with the idea that treating the source of pain is more effective than masking the pain.
Jacob Teitelbaum, M.D., is the lead researcher for the study. He likens pain to the oil light on a car dashboard. When the oil light flashes red, we know the car is low on oil. Human pain is analogous to that light. "But, unfortunately, there is nothing written on it," Dr. Teitelbaum says. "Pain is a way of saying something desperately needs attention, whether it's a thorn in your foot or your hands on a hot stove."
Dr. Teitelbaum believes one not-so-obvious factor of painful conditions, like fibromyalgia, may be an energy crisis in the body's cells. That's where the sugar ribose comes in. Ribose is used by the cell's power-generators, mitochondria, to make energy molecules for the body. Ribose is actually one component of DNA (deoxyribonucleic acid). The body creates the sugar, however, some people are not able to create enough of their own ribose -- leading to less energy and more pain.
Dr. Teitelbaum and his team tested a ribose supplement on 40 patients with fibromyalgia and/or chronic fatigue syndrome. Each patient was given a 5-gram scoop of ribose, usually dissolved in water, three times a day. Later in the study, patients could opt to reduce the dosage to two times per day.
Preliminary results of the study show about two-thirds of the subjects reported increased energy and decreased pain. Researchers report 20 percent had a dramatic improvement in their pain levels. The average improvement in pain for all the patients was about 25 percent.
Dr. Teitelbaum says these results point to what may be one treatment that can be added to the regimen of relief for chronic pain sufferers. "This is one piece of the puzzle. It helps with the nutritional support," he says.
The next step for this research team is to design a larger, double blind study.
This article was reported by Ivanhoe.com, who offers Medical Alerts by e-mail every day of the week. To subscribe, go to: www.ivanhoe.com/
I can relate to you, Valery. Rare is the day we have a 'good' day. Then we try to do all the things that we've been dreaming of doing and boy do we pay for it! Let me ask you out there with this, does travel hurt you like it does me? Just trying to go 40 miles to visit my dad wipes me out the next day or two. God bless all of you out there and keep putting new tips up as you find them and I will also.
I am 37 years old and I too have fibromyalgia plus other medical issues. I've had these issues for awhile. I can relate to everything y'all are going through. My problem is when I tell people, & I don't tell too many, because I don't want the sympathy or someone telling me I cant do something.
But within the last 2 years things have gotten a lot worse I was fired from my job that I was with for 5 years because some days I was unable to go to work or I would be late or have to go home early. Since I was a service manager that wasn't good leadership.
I also feel like my family thinks I'm just lazy and I don't want to do anything. I use to be the mother that was at everyone of my kids game regardless where and this year I probably only went to 2 games. How do you overcome the depression of it all and how do you help your family understand?
I have fibro/cf and lyrcia has changed my life. Ask your doctor. If it could work for you. I'm now working again and able to do things I hadn't done for years. 80% better!
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